25 year old Eva Markvoot had cystic fibrosis and created her blog 65_RedRoses to document her struggle in life. This disease is incurable, it causes mucus to gather in the lungs. For four years she has been blogging about her life with a terminal disease. It was very rare to get a double lung transplant so chance of surviving was to a minimum. This is not the interesting part. Its not meant to be a tragic story but one that is inspirational believe it or not. Whats amazing is that this young woman knows she is going to die and in her video this is what she said. "Hello to the World at large.To my blog, to my friends, to everyone. I have some news today. It's kinda tough to hear, but I can say it with a smile.My life is ending." Eva Markvoot knew she was going to die one day and she was living life to the fullest. She was prepared and instead of grieving she wanted to be connected to the world. According to Dr. Chris Fuedtner, research director Palliative Care Services at the Children's Hospital of Philadelphia. What the World is experiencing over the last decade has been a cultural shift. Publicly sharing your thoughts is a way to vent and acknowledge that the end is near and it decreases the fear and shame of death. Lets face it we all want to share what happens in our everyday lives through out the day. Hundreds and millions of people log into networking website such as Facebook and Twitter just to update their status messages its not surprising that someone would want to do this. Its interesting. People with terminal diseases must have a mindset of that they are still alive and they don't want to be closed off from the world not just yet. They want to use their time to explore and connect with others. So they let us know whats in store for us, what they learned during this new experience or situation for them. Through their journey and hardship they not only tell us what we want to know but what we need to know or be prepared for. Face it we will all come to this day we just don't know how and when. Eva Markvoot would not only connect with the world but tried to find other patients online as well. She would post videos write about her days upload pictures of her having fun with her family and friends. It wasn't always like this Eva didn't let you forget about the reality when doing her videos she would have cases of vomiting,nausea,hours trying to gasp for breath,and sleepiness. "I'm drowning in medication, I cant breath." Is what she wrote one time in her blog. Eva showed you her life but the theme of her blog was mostly surrounding love. Eva didn't know how much time she had and already processed that she was dying. So she celebrated her life due to a sense of urgency to fulfill it. "This is the end of my life but its not the end of my love." said Markvoot in a video entry. Unfortunatley we lost her, she died Tuesday Morning March,27. The same way Eva opened up her life for strangers using her blog, her parents will do the same with a live stream recording of a memorial service for Eva. You can see it at her blog 7 p.m. Friday. That was Eva's last wish to her mother. She thought it would be cool to let her family post for her bloggers how it is even after she is gone. R.I.P. Eva Markvoot. You were a brave person, I respect you giving up your dreams but still being optimistic and living life. I respect you for inspiring people through out the world and reaching out to them. Even right now I am blogging about you and your blog, pretty ironic. You will surely be remembered by many of your friends,family,and fans.
If you want more news on this story you can visit Eva Markvoots blog at 65_RedRoses.livejournal.com or you can follow up on the full detailed coverage of the story on CNN at the hyperlink below..... You know what I realized its crazy how one individual can have such a huge impact on the World.
http://http//www.cnn.com/2010/HEALTH/04/27/blog.terminal.illness/index.html?hpt=C1
No comments:
Post a Comment